Is This The Place To Post Things That Are Not Obviously Computer Related?

More or less SUDDENLY my vision started failing me. So if this is not the right place to talk a little about how this has affected/effected way more things than anyone might imagine. Some of these things may easily be understood and make sense; like password errors. I have no idea how to express how frustrating this is but thank the computer gods and any other gods for creating password app's and programs to remember them!

That said, my bank for instance ( their I.T. department } decided that a change was needed. After " signing in " with my password program they decided to test me by presenting me with an identification test. Perhaps robots access the bank sites and only a human being can identify and put together a puzzle. I can barely read, write or type without lots of help from devices and contraptions that I have put together to allow me to " see " to a degree and as time goes by the vision quickly changes and when I tell doctors that a luminescent blue string or lines starts weaving through the black letters eventually obstructing the whole word or sentence of paragraph so I need to stop relax for what started out to be 10 minutes and now is up to 30 or 45 minutes. Several doctors say: " that doesn't make sense " I wonder " what am I suppose to do with that comment?

I understand that this may be viewed as complaining which makes me not want to ask for help. I can't just saay:
" I'm going blind " because some details are needed.

The one thing I want to ask her before whatever it is that has gotten me suspended from a couple of other computer support sites might be understood here and I'm great with suggestions and guidance so If anyone wants to ask me if I used obscenities or posted inappropriate things on those sites please ask me anything.

On one site I did a screen shot and sent it to the site via their help page asking them if they would tell me specifically what I did to warrant a suspension? IF they replied the BLIND thing makes finding their email reply ( I suspect that email is the only way to reply to my inquiry? ) But I don't know for sure. I do know that the as the need for help geometrically increases the more difficult and bizarre the attack on me as a human being grows.

I've mentioned this to every " provider " that I have, one called the suicide help line and the cops were deployed in two states. In one state two officers came to the ER where a tube was being pushed through my nose causing insane pain and once the two nurses realized why the cops were there one whispered in my ear: do whatever you can to convince them that you are not suicidal otherwise they will drag you out of here and bring you to a psych hospital and trust me YOU DON'T WANT TO BE THERE FOR 72 HOURS and they do not care that your intestines are twisted and if not addressed you can DIE!

I was VERY LUCK that the officer who came in to talk to me was a VETERAN and he explained everything to me. It wasn't a free pass or a give me. He intelligently explained that with a call from a shrink saying that I was suicidal means they are required to check me out. He went on to say that his partner viewed these calls as a Pain in the A and if it was him who walked into my room I would quickly be on my way to the PSYCHE hospital. But as a vet he gave me an opportunity to explain and to answer a few questions. He found that I was okay and it turned out that I was hospitalized for a week for a twisted intestine.

Since I spend time in two states, at my other location a neighbor took a video of two sheriffs walking around my house with guns drawn looking in windows and trying every door.

In a way this all stemmed for an email I sent to my shrink asking him to advocate for me instead of making fun of me by saying " Maybe it's just flashbacks from the 60's and laughed.

The was two years ago and things are getting worse. I have stated that I might die BUT NOT BY MY OWN HAND! I told the " providers " that THEY are killing me by not listening to me and ordering bizarre exotic tests that take a month or more to get results back then they hammer me with steroids. Just what I need to make me a MADMAN and scream at the things they tell me.

A few days ago one doctor told me that maybe I need to be deemed incompetent and put away. Then last Monday I found a new doctor on HEALTH GRADES who listened to me then looked at me, then told me that two years ago I could have been FIXED if they only took my cataracts out!

I apologize especially if this is in the wrong place. I just need someone to HEAR ME and maybe soon rescue me before they drag me off: cutting my arm off for a splinter in my finger ( in a manner of speaking.)

Any idea's?

I appreciate any help I can get especially from my military Brothers and Sisters!

Krypto

 

Hey Krypto, I know most of your problems extremely well from a first hand perspective. In 1999 I went to bed with a slight headache and woke the next morning almost totally blind. The ophthalmologists and neurosurgeons got a little bit of my sight back but I am still almost blind and with an initial diagnosis of MS (multiple sclerosis) or possibly APLS (anti phosphor lipid syndrome) but these conditions didn't really match my symptoms.
It took another 6 months of blood tests, MRIs and 9 nerosurgeons (6 of them research professors) and 4 ophthalmologists to diagnose me with SLE (systemic lupus erythematosus) which supposedly young white males never get. I was the first young white male positively diagnosed to have this problem in Australia. The drug regime they worked out is very comprehensive and at times I have had to take 60 tablets a day and also have several IV bags of steroids. At this point they only gave me 10 years to live due to the high drug load......I didn't give in though as I am stubborn.
Move forward 20 years and now I am having all kinds of very serious health problems caused by long term steroid use and constantly taking hefty doses of immunosuppressants.
Luckily in Australia we have a pretty good healthcare system and you can go to many doctors until you find the right one without it costing a lot of money. I eventually found a research professor who was a neurosurgeon specialising in nerve growth from stem cells and I have one of Australia's leading lupus research professors and he is a rheumotologist and I also have a very good ophthalmologist and these are my main carers.

As Tim says you need to find a non judgemental doctor who listens and that you are confident will have the best outcome for your healthcare situation. Personally I have a background in research and development and I used to be an electronics engineer so I don't believe everything the doctors say without checking first so if I don't like what a doctor is saying or I don't think he is looking after my best interests then I go see somebody else. Eventually you will find the right doctor for you.

One very important thing to take from this..........
Your doctors are making decisions that can affect you adversely for the rest of your life and at the end of the day if something goes wrong then they go home to their normal life whilst you are left to pick up the pieces of your own life.
Please make sure your doctors are making the correct choices because if they make a mistake then it will be you who suffers. Don't be afraid to change doctors.

Good luck for the future and I hope your situation improves
Cheers
joffa

 

Yeah my doctors are the same they give me a range of treatments and probable outcomes depending what treatment I choose.
What I was getting at previously and wasn't very clear about is that you need to check what the doctors are telling you is the correct choice for you before you go ahead with any treatment they suggest is "the best solution" as I found some past doctors would push for a particular type of treatment because it was the easiest for them and took up less of their time but their favoured treatment was often not the best long term solution for me. If the doctor didn't want to change his favoured treatment for something better suited to my situation then I either got a second opinion or changed doctors.
BTW I cross reference what the doctors tell me by checking on the Mayo Clinic website, the AMA website, I also check articles in The Lancet and also several research sites pertinent to my problems.
The four main doctors managing my problems have been treating me now for about 18 years and my GP has been treating me since 1992 but at one stage when I first went blind I had nine neurosurgeons and three ophthalmologists on the job all trying to get an accurate diagnosis (it took 6 months) of what the actual problem was so that I could justify that taking the massive amounts of drugs they were prescribing was the best way forward for me.
Something worked out okay as I am still kicking although a lot slower these days.......

 

So sorry to read how horrid some "specialists" have treated you and what you have been going through. You have the right to seek what is best for you and what doctor(s) suit your needs. DavidGP being in that particular arena appears to have put some solid suggestions for you; with others voicing the same thought to seek a doctor(s) to meet your needs. Good health!