Completely Off Topic

Ok I just need to vent & maybe find some assitance with a major problem I have.

I have a condition called RSDS ( Reflex Sympathetic Dystrophy Syndrome ). Anyway, I am in an excruciating amount of pain most the time & I'm not able to do much of anything. I've gotten to the point where I can't walk & without causing myself even more pain. It's all I can do sometimes to even stand up out of this ol' chair.

I'm wondering if any of you might know of some kind of support group that helps people find medical care at an extremely reduced cost or free. I have a doctor for all my other health problems, but I can't make them understand what I go threw each & every day. It's very hard to describe what this feels like, other than to say it feels like the insides of my leg are on fire. I am in the process of opening a message board where people with this coindition can come & share thier experiences with others, in the hope that it will ease some of the "It's all in my head" crap we get from the majority of the medical community.

I have no insurance & the treatments I require are very expensive. VERY & I have no means of which to aquire them. Everywhere I've been to get some help, I get told "While they want to help? Without insurance there is absolutely they can ( or will ) do to help me".

I am being told more & more that I'm becoming depressed. Which I am not. It's just that it's getting more & more difficult to cope is all. Imagine if you will that every waking hour & even when not awake, you are in a state of pain that would cause most people to just curl up & die. Yet you don't want that, but sometimes it's just too damn much to take.

I'm not looking for sympathy, just some understanding. Even my family has a hard time truely understanding what I go threw each & every day. So if any of you know of any kind of help I might apply for it would be greatly appreciated.

Oh yea..............I can't get on Medicaid because I don't have dependant children & I'm not old enough. I get food stamps, but they are threatening to take those away because I am unable to work. Go figure. If it wasn't for a local clinic I wouldn't have the meds I get now. They all come to something like $1000 or more a month, not including all the visits to the clinic. I'm on meds for Diabetes, Anxiety attacks ( steming from the RSDS ), High Blood Pressure ( again steming from the RSDS ), something for my stomach ( yet another cause of the RSDS ( mainly the STRESS hehe 0 & a few other things.

So again.....if you know of any program I might get into or just a shove in the right direction. It will be most appreciated.

Chris

 

Have you tried any of your local churches? You might find someone who can find something for you there.

 

Greetings , HUGSSSSSSS I too suffer cronic pain,, and one of the symtoms of being in this constant pain is mild depression, its only natural,,not being able to do the things we enjoy in life, lost activites we use to enjoy are restricted by pain., ETC ETC you understand...and I have also been there wanting it all to end,,but have a wife and child that need me very much and I draw my strenth from them, Think the important people in your life that care about you,,,,,I'm also glad you posted this thread, with all the GEEKy stuff on the computer and boards , there are PEOPLE behind all the posts and want you to know that I CARE and I'm sure others do as well, Please feel free to PM me or drop me a email at glennk721@gmail.com Sincearly Glenn

Well here are some outlets for you first there is a group called ...Depression and Bipolor Support Alliance website www.dbsalliance.org they have great information about support groups over a 1000 chapters strong and worldwide , they also have a online chat room,,,,you will find people there that also suffer PAIN DEPRESSION, Im sure they have a local support group in your town also !!!


This some info I grabbed off the net for you :



Reflex Sympathetic Dystrophy Syndrome Association

National. 100 independent groups. Founded 1984.

Aims to meet the practical and emotional needs of reflex sympathetic dystrophy syndrome (aka chronic regional pain syndrome) patients and their families. RSDS is a disabling disease involving nerve, skin, muscle, blood vessels and bones. The only common symptom in all patients is pain. Promotes research, educates public and professionals. Quarterly newsletter. Group development guidelines available in French and Spanish on website.
WRITE:
RSDS Assn.
P.O. Box 502
New Milford, CT 06460
CALL: 203-877-3790
E-MAIL: jwbroatch@aol.com
WEBSITE: http://www.rsds.org
VERIFIED: 3/12/2003

http://www.peacehealth.org/kbase/shc/shc29ref.htm



Reflex Sympathetic Dystrophy

http://www.health-nexus.com/reflex_sympathetic_dystrophy.htm

​

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex Sympathetic Dystrophy Association of America - Information site. Promotes great awareness for Reflex Sympathetic Dystrophy. Includes video, news clips and links.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex Sympathetic Dystrophy - Reflex Sympathetic Dystrophy Menu This is a webforum to discuss and comment on Reflex Sympathetic Dystrophy. Click here to Enter a new Neurology WebForum article... Click Here to Read our Forum ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifUniversity of Washington - Reflex Sympathetic Dystrophy - Factsheet about reflex sympathetic dystrophy syndrome, with details of the course of the disease, medication, and other treatments.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex Sympathetic Dystrophy Association of California - Support and education organization offers facts and fiction about the pain disorder. Read about their advocacy efforts and accomplishments.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifInternational Reflex Sympathetic Dystrophy Foundation - Delivers information resources, puzzles, studies, articles, surveys and FAQS.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifMEDLINEplus: Reflex Sympathetic Dystrophy - ... the National Institutes of Health. Reflex Sympathetic Dystrophy Syndrome (National Institute of Neurological Disorders ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifQuestions and Answers about Reflex Sympathetic Dystrophy - Frequently asked questions about RSD (Reflex Sympathetic Dystrophy) with answers from principals of key workers in this field.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifAmerican RSDHope Group - ... RSD, RSDS, Reflex Sympathetic Dystrophy Syndrome, Chronic Pain ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex Sympathetic Dystrophy - Resources and information for RSD ... -date!Subscribe to our newsletter. Advertising Free Credit Report Free Psychics Reflex Sympathetic Dystrophy Guide picks RSD is like having your extremities set on ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex Sympathetic Dystrophy and Complex Regional Pain Syndrome UK Home Pages... - ... Thank you RSD UK - Helping those with Reflex Sympathetic Dystrophy & Complex Regional Pain Syndrome"RSD UK Alliance ... up to give support to those concerned with Reflex Sympathetic Dystrophy aka Complex Regional Pain Syndrome (other names ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifMCN - Reflex Sympathetic Dystrophy Spells Controversy - Issues of Injury profiles the debates surrounding the diagnosis, causes and treatment of this chronic pain syndrome.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex Sympathetic Dystrophy Message Board - ... Pregnancy Rare Disorders Reflex Sympathetic Dystrophy Restless Leg Syndrome ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifRSD Victims Support Group - Online support group for patients and families dealing with reflex sympathetic dystrophy. Provides information, links, news and personal experiences from sufferers.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifArthritis Research Campaign | Reflex Sympathetic Dystrophy - This leaflet has been produced for anyone interested in finding out more about reflex sympathetic dystrophy (RSD). We want to explain as much as possible about the condition; how it is diagnosed and...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifMy Child and RSD (Reflex Sympathetic Dystrophy) - My Child and RSD (Reflex Sympathetic Dystrophy (Reflex Sympathetic Dystrophy) This is Dr.Frank Mcdonald ... learn more about RSD (Reflex Sympathetic Dystrophy) please visit the links ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifSouth Carolina RSD Support Group - Provides a forum, meeting schedule, events, and general information on Reflex Sympathetic Dystrophy.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex sympathetic dystrophy hub - A brief definition of reflex sympathetic dystrophy, followed by links to research articles, overviews, case studies, support groups and associations. ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifRSD On Line - Peruse this Reflex Sympathetic Dystrophy sufferer's personal page that contains general information, personal stories and medical and alternative treatment options.

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifTony's RSD Site - Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome, Links, Support Links, Email, Stories, Personal pages ....

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifreflex sympathetic dystrophy - a CHORUS notecard document about reflex sympathetic dystrophy ...

http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifJim O'Donnell's RSD/CRPS Site - Reflex Sympathetic Dystrophy sufferer explains the condition's symptoms, causes and treatment. Learn about related neurological problems.

</B>http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifReflex Sympathetic Dystrophy - Reflex Sympathetic Dystrophy Definition Signs and Symptoms Testing Treatment and RSD-like Conditions The following is an adaptation from The Patella- A Team Approach by R Grelsamer and J McConnell, ...

</B>http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifSuite101.com - RSD - Read articles on the symptoms, diagnosis, and treatment of reflex sympathetic dystrophy, join in discussions or browse links to other RSD sites.

</B>http://www.health-nexus.com/_themes/blends-health-nexus/health-bullet-blue1.gifTreatments on RSD Alert - Catalogue of treatments used for patients with RSD (Reflex Sympathetic Dystrophy) including descriptions and comments from patients about their positive and negative experiences



Various other links on these page's



http://dmoz.org/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy/

</B></B></B></B></B></B></B></B></B></B></B></B></B></B></B></B></B></B></B></B></B>

http://www.rsds.org/


http://www.workerscompensationinsurance.com/workers_compensation/rsd.htm


http://www.esupportgroups.com/


http://www.joeylee.com/rsdresources.html


http://lists.topica.com/lists/RSDerFriends/?cid=4827





​

I hope this is helpfull, Glenn

 

Thnx bunches man. I'm actually getting a little misty eyed. Seriously. Abby can I send ya a private messege? I'd really like to know where you went to get some quality help. I too live in Florida, so maybe I can seek help from the same folks that you did.

Finding these websites has been a big help to me. I have been thru the whole gamut of emotions with this thing & have often thought I was insane. Not that I've even contimplated anything of the sort, as I like myself way too much hehe, but..........................I can truely understand why someone would feel the urge to just give up & even take thier own life.

I've been threw the Lumbar Blocks & various other treatments that have only given me limited relief.

To Glenn.......Very helpful indeed, Thnx again brother.

 

well done glen. that was a comprehensive list of help. I'm impressed. i too suffer from pain....although no longer in the magnitude that you are. (i have a non-union fracture. this basically means i have a permanently broken arm.) it took me 5 yrs and four lots of major (and unsuccessfully) bone surgery to get ssi. despite the fact that even a novice could look at my x-rays and see that my arm was broken, i still had one doctor tell me it was all in my head, that i was addicted to pain killers, and that i was imagining the pain in order to stay on them. (mind you she hadn't even bothered to look at the x-rays or speak to the consultant when she made that 'diagnosis') go figure. my thoughts and prayers are with you all.

 

Thanks Laurie, Sorry you are Ill as well....When I post I try to be as accurate with information as I can. Thats what makes this forum so great , People Helping People, Some folks have no Idea of what REAL pain is untill you suffer from it , and sadly some will think you want a pain killer for the heck of it. I'm Foutunate my Dr is a young guy LOL my age hehehe 40 or so ,,,and like a Marcus Welby ---LOL puts his patients ahead of the HMO's and systems,,treat the person ,His thoughts are that pain is our 6th sence so he treats it as such,,...Unfortunitly I am on constant Pain Managment ,, but I would rather regulate the pain to have QUALITY of life rather then just suffer.....

 

To Abby----I thought maybe you had found a good doctor to help you to get on some sort of pain management & if we were actually close enough maybe I could get with them as well. Sometimes it's the hopelessness of it all that tends to get me down just a bit. I do take Neurontin, but it seems to be affecting my short term memory.

Anyway I've been dealing with this, being that the original injury happened when I was 11 years old, for a long time. I've had good & bad times with it ever since then. Just over 2 years ago it came back with a vengence & it's just getting worse by the day.

Well I'm off to search some more of the links Glenn put up. Thnx to all for your understanding.

 

P.S.
I have been threw the whole SSI Disabilty process twice now being denied 3 times threw both attempts. Without a doctors help I have little chance of getting on it ever & being that I have no insurance? It's difficult to locate a doctor willing to just give me a break & help me because they are just good people. They are all so worried over law suits, not that I don't understand that. It just furthers the hopeless.

 

suesman,

I am really sorry to hear about this my friend. I think the advice and suggestions that AbbySue has given is excellent for someone in your situation or condition, it is never hopeless, and after reading AbbySue's reponse, I feel like I could get thru anything.

I think there will be major changes in our HealthCare System here, it has gotten to a point where "they" have to do something. So keep hope alive and know that something good will come.

I have dealt with you personally and know that you are a good person, you care about your family and children. I am certain, that no matter how difficult things may seem, they will support and help you.

I was so impressed with AbbySue's post, I hope you will keep trying for Social Security Disability and SSI........don't give up.

Steve

 

Thank you thank you thank you. The Medicaid? Well it's the government, what else can I say. hehe I will outline the whole thing in my e-mail to you. Thnx again.

@ Matacumbie. Thnx for the kind words. I do have a good support system here at home & without them I would have nothing.

@ AbbySue Your e-mail is blocked. I can go into all this right here if it's cool with you.

 

Ok here goes...............

I am 40 years old, will be 41 Sept. 7th.
I live in Okeechobee, Florida.
Yes I am married.
I live with my wife, her daughter & son.
No I am currently unemployed. I worked construction most of my life ( sheetmetal a/c installation. ) & when my leg got too bad to continue with that I went back to driving trucks, which the Diabetes made me stop doing. Can't pass the physical anymore.
My wife & step-daughter work multiple jobs to keep a roof over our heads.

Ok this is where the story goes long........................
When I was 11 years old a railroad crosstie fell on my leg. Every bone in my left foot & ankle were broken. They told my folks then that I may never walk again or at the very least not correctly. I spent the next almost 3 years in mutiple different casts & physical therepy. This was early 1975.

Throughout the next 24 years, I rebroke that ankle 3 times. I've always had some level of pain in that leg, but I just shrugged it off & went on with my life. Then in 1989 I broke it again, this is when I was diagnosed with RSDS. At this point I had numeruos Lumbar Blocks & various other treatments & medications with limited relief. This was on a Workmans Comp case in Arkansas & the insurance company cut me off & pressured me to settle. I hired what I thought was a good attorney ( pardon the pun ) & proceeded to pursue treatments, but he screwed me & I settled.

Up until just over 2 years ago I basically just "sucked it up" & went on with my life again. Since '89 I have always had pain in that leg, but with no knowledge of just what or how bad the RSDS was. Yes even after being diagnosed in '89 I was still told by many doctors that it was "all in my head".

Ok for the Medicaid thingy..............
I do not qualify because I have no dependant children & I'm too young to meet thier requirements. I do recieve Foodstamps, but at this time they are threatening to take those away too. They say that there has to be some kind of job that I could do. What that might be is beyond me, but they seem to think that there is. Today it's all I can do to go to the bathroom alone. Taking a bath opens whole new realm of pain. Making love to my wife is completely out of the question as again.....Whole New Realm of Pain.

My day consists of sitting in front of the computer ( which I can't do as long as I once could ). I can't sit or even lie down for too long of periods without increasingly the level of pain. I don't sleep, maybe 2-4 hours a day if I'm lucky. I find my short term memory to be affected as well. I lose words as I try to talk to the point that I have to just stop whatever it was I'm trying to spit out. Really makes you wonder if you're not losing your mind. RSDS affects the brain stem to the point you start having problems with the simplist of things. So yes I do tend to let it get me down.

I always loved riding motorcycles, but that can't happen anymore. I don't drive because like I said, I tend to lose my short term memory & I don't want to be that guy that has no idea where he was going or what he was doing, not to mention the pain I'm in from just being the car. The vibrations absolutely destroy me.

As far as the level of pain I'm in? Well let's just say that it's 24/7. I don't know what you know about the Pain Scale, but I would say I'm in level 7-9 out of 10 most the time. The only thing that really helps to ease it at all is a long hot soak in the tub. Even then as soon as I get out the pain instantly returns. There are 4 levels of RSDS & I truely believe that I'm at Level 4. There is absolutely no cure at this point. Only thing I can hope for is a bit of relief now & then.

I would like to add that I am not a weak person. Not tooting my own horn or even patting myself on the back, but I'm not a crybaby. Of course that could be why I've gotten to the point I'm at.

As far as the SSI Disability? I have applied again & again with nothing but denials. I have just recently reapplied, but it will be months before I know what is to come of that. I'm having a bit of trouble accessing all my medical records from the original injury in '75. My dad was in the Navy at the time & they just don't want to cooporate at all. They have even given my dad the ron around as far as releasing medical records go. 21 years in the military & still nothing but red tape.

Oh yea one other thing. The medical records from the other times I've broken this ankle are gone, it seems the hospital I was treated at is no longer there & nobody seems to know what was done with all the medical records. I am currently looking into that, but it's slow going at the moment. The attorney I had in '89 won't return my calls & I cannot afford the huge phone bill to keep calling him.

So in short I do feel as though I'm caught in a neverending circle. Always coming back to the same point with the same results.

As far as people knowing what I'm going through? All the better if ya ask me. As I stated in my original post. I'm not looking for sympathy, just understanding & maybe a bit of help.

Chris

 

Oh yea one other thing. I have what can only be described as massive cramps that last for hours on end. At which point I am totally immobilized. Sometimes I can soldier through, but they are getting worse & worse & I'm having alot more trouble coping with those. It's not like the muscles are even tight, it's more like a phantom type thing. I also know for a fact that I am experiencing some level of atrophy, as my leg muscles are just not there anymore. I also have violent bouts of shaking of the leg that hurt like hell & I can't make it stop. Also any touching of the skin anywhere on the leg ( all the way up to my hip ) causes emense pain. Even wind from a fan or the sunlight causes me pain. I can't wear long pants because the fabric touching me absolutely kills me, but I can't go out side in shorts either because the sunlight on my skin id too much.

I'm truely sorry for the multiple long posts, but as I said, I tend to lose track of what I'm doing from time to time.

 

suseman, that really sucks. i hope you find some way to get the treatment. there is something wrong when you live in the most powerful and advanced country in the world, and can not get proper healtchare.. </mini political rant>

 

suesman, you're in good hands with AbbySue. I recall some of her struggles to get her own condition diagnosed. There are no guarantees, but usually there's an answer out there somewhere, it just takes time and perseverance to find it.

When Thomas Edison was trying to invent the light bulb, and had tried literally a thousand different things to make a filament that would burn without burning up, somebody asked him about his "failure". He answered them that he had not failed, he'd just eliminated 1000 things that didn't work... and he continued working.

You've got a tough case, and have hit a LOT of dead-ends and non-answers. But you only need to find ONE that works to start turning things around. Hang in there!

 

yeah, hang in there man. my uncle has had severe problems for years. he has been diagnosed with everythign from MS to lupis. just remember that no matter how bad things get, you all ways have your family and friends.

 

Hmm, yeah, even though I'm no stranger to pain on a daily basis myself (I wont bore anyone with details), you're suffrage is indeed intolerable.

Unfortunately, I'm not up to date with U.S. Law anymore so I'll leave that up to A.S. and the others. I remember Abby's continuing sagas well.

One thing I wanted to share with you, that could be anything from useless to fairly useful is one of a few treatments I'm using to treat a partially crippled right foot that's flared up again over the last three months or so. Basically there's a lot of bone and nerve damage there from an old army injury in Rhodesia back in '80 (long story). Anyway it appears some loose bone chips or fragments are jabbing into the nerves, especially around the large toe and across the heel - making it very painful to put any pressure on that foot.

Tried a lot of anti-inflammatory, analgesics etc. with some symptomatic relief. Anyway what I'm getting at, is someone gave me a jar of this purified Emu Oil of all things, which is applied to the skin and rubbed in (as much as pain will allow) every four hours or so.

What does it do? At first I thought 'prolly nothing, being a sceptic, but it seems to (a) work its way into and lubricate the joints; (b) promote healing of the skin (c) promote circulation - you can see the blood vessels 'pop up' on my foot after about 15 mins. (d) Also seems excellent as a 'trans-dermal vector' - meaning that any other topical treatments I apply to the skin are made available more rapidly and more effectively. Often hours later, or the next day I feel (and hear!) something cracking back into place.

Bottom line. It is doing a real god job of relieving at least enough pain for me to walk around (albeit still 'limpy').

Emu Oil is available in The U.S and by mail order, but you need to get hold of the pure stuff, that's expensive but works much better. It should be semi-solid and slightly yellow - not white and solid when it's been adulterated with Parabens.

Anyhow, like I said, if it’s no use, sorry to waste your time. But maybe it might be of some help.

(Oh yeah, it an excellent anti- bacterial agent and is very Hypoallergenic)

Links:-


http://www.kcweb.com/herb/emu_wonder.htm

http://www.emuoilsource.com/

http://www.viable-herbal.com/herbology/herbs33.htm


http://www.emuoilsource.com/

 

oo phantom, i might try some of that on my arm. i tend to resort to strong pain killers on my 'off' days. if they don't work, then i get drunk to boot. (coma definitely works!) not the best way of handling things i know, but thats rare enough for me not to worry too much about it! i fortunately also have a very supportive family. suesman, as everybody has said...DONT GIVE UP!! either with the SSI or with the other aspects of your life. you are in my prayers and although i don't know what you believe in, i KNOW that there is more to suffering than suffering. that somewhere, even if you never know about it, your pain and experiences have meaning. hang in there. "All was well, All is well, and All will be well". (sorry, don't know the source of that quote.) aloha

 

Well I've never been a quitter & I surely don't want to become at this point. Like today for example, I came & read the latest posts earlier today, actually wanted to answer them, but ( ain't there always a but? ) sometimes the pain is so bad that my hands tend to shake, so typing is pretty much out. Anyway I just wanted to say that I will come in the morning or later whatever comes first , & fill in more blanks.

Chris

 

Ok I've been real busy the past couple days tryin' to get my new website up & running. How you guys keep up with this site is beyond me. I see just how much work goes into maintaining one now fer sure. hehe Anyway..................

Some friends are also gonna try doing some sort of benefit to help me get the money so I can get to a qualified doctor. So things are lookin' a bit brighter today.

@ Abby I will be back today with all the answers to your latest questions. I'm trying to get it all together so that I don't give you half answers that lead only to confusion. This has been going on for a very long time now & I don't want to make it worse by giving the wrong information.

Chris

 

Google search on Phantom's emu oil gives 75000 hits on "emu oil" and over 7000 hits on " emu oil" and "australia". Hope this helps you all. May help me with gammy knees, also. Bazza

 

Ok I've tried the Emu Oil, very much appreciated man. Does it make the pain go away? Of course not, but it does seem to ease it a bit.

I'm still waiting on some paperwork from various doctors. So as soon as those come in I will get the information to you Abby.

 

Well it's good to hear it has been of some use, anyway. Regular, long-term use is the key, as with most Homeopathic stuff.

Another Homoeopathic item I found that helps reduce inflammation is an application in the skin's surface of Colloidal Silver, strangely enough. Colloidal Silver's almost universal antiseptic properties are well known, but what surprised me was its anti-inflammatory abilities as well. The Silver applied to the surface of the skin, followed by the Emu Oil a few times a day seems to do surprisingly good job. I've used it from anything from a few ml in a nebuliser for astute Asthma attacks ( http://asthma.about.com/cs/medication/l/aa081699.htm ) to rinsing the mouth for toothaches, to just applying to the skin's surface for anti-inflammatory effects. A few ml can also be drunk and apparently keeps the old upper respiratory tract free of 'bugs'.

Worth a shot, I guess. It won't cure the pain - but it should be of some help.

Once again make sure you get the good quality stuff 99.9999% pure). It's more expensive, but worth the investment.

Available world-wide from health stores (be careful of cheap brands), and mail order, the i-net, etc.

There is also a silver based cream for topical use, but I still prefer the solution for the fastest penetration, followed by the Emu Oil.


(Being a Chemist, I make my own stuff, heh!, heh! )


http://www.all-natural.com/silver-1.html

http://www.elixa.com/silver/


An Australian Site:-

http://colloidalsilver.8k.com/

http://www.silverprotects.com/

http://www.beprepared.com/product.asp?pn=WP S800


Reports of people "turning grey", have only occurred when certain people have taken many, many times the concentration they should have.

 

Hi Chris,
I too am disabled by pain. I am one of the few people I am aware of that was approved for SSD on my first application. Along with all of the good advise others have offered here if I could just add one more thing. For years my husband and I vacationed on the Outer Banks and became friends with a couple from Virginia that vacationed in the cottage next to ours. This was long before I became ill. I knew that the lady worked for Social Security but we never talked much about our work. Actually we drank heavily and let our three labs run amuck through our rented cottages. Well, when I became ill I called her and it turned out she worked for the Disability department. Her best advise to me was to call the person handing my application at every step in the process. So I did. With every form I filled out I waited a few days and called to inquire about that step..... Did you get all of the information you needed? Did my doctors sent you what you needed? Is there anything else I can do to help this process along? That sort of thing. Believe me I know this is no easy task. I take 4 different medications just for pain and some days I would hang up the phone and just weep from the effort it all took. You are not alone.
I was fortunate to find a wonderful pain management specialist. It was just a lucky break. While I was at phyical therapy one day my family doctor called and left a message on my answering machine saying I took more pain medication than his cancer patients and he wasn't going to give me anymore. I couldn't imagine trying to live without some break from my most severe pain. He left the number to a pain management group and I was lucky enough to get this amazing woman. She was just the first doctor in the group that had an opening. It sounds like you are due for a lucky break. Hang in there in trying to find good docs.
I hope this helps a little. I'l be looking to see how you are doing.
Take care, Sam

 

Well right now I've just learned there is a problem with my birth certificate. I won't go into all that, but let's just say it's a big mess. Seems the name on my birth certificate is not the same as my SS card. Not that I didn't know this, but it seems I was never legally adopted. Nice huh? People I've talked to say this could potentially be a huge issue. Ok maybe I will go into it, but now I'm done. hehe

I am still trudging threw, but sometimes the pain does whoop me, I have to admit.